The birth of a child is one of life’s greatest experiences; the emotional and lasting impact has consequences that will last a lifetime and beyond.
When that birth becomes compromised with a life-threatening birth defect, your world is immediately forced into a tailspin of unimaginable emotions.
This is a story of two lives on two different paths that would come together with a shared goal and vision of helping countless families not just survive, but thrive in some of the most challenging circumstances.
They met under the most unusual circumstances while attending a National Congenital Heart Defects fundraising event in the fall of 2015, a meeting that would change their world forever.
The first path, Leslee and Jason Schneider, their daughter Lexi was born with a rare heart condition; Hypoplastic left heart syndrome. Without surgery soon after birth, the condition would be fatal.
They were given three options: abort the baby, let it develop within its natural life span or take surgical measures to address the defect. They chose to fight for the survival of their daughter. It would be a journey of hope, persistence and faith that would test them like never before.
The other path, Brittany and Brady Griffith had just minutes as they rushed into the operating room to hold their newborn son Liam. He was born with Transposition of the Great Arteries (TGA), Double Outlet Right Ventricle (DORV), Ventricular septal defect (VSD) and Pulmonary Stenosis.
21 hours old after enduring open heart surgery, Liam’s life was cut short. Brittany explains the driving principle of Romans 5:3-5 changed everything for her. “We rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope. And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us.”
Their story continues on the Brink of Greatness Podcast…
The Next Leap Forward
Life has a way of connecting like-minded people with a common goal. As you will discover, the work that Leslee and Brittany and their families are doing is remarkable. They have turned their tragedy into their life’s purpose.
The Lexiam Heart Foundation was founded in February 2018, to encourage and help other families affected by Congenital Heart Defects (CHDs). Their goal is to comfort and provide support to children and their families that have been impacted by CHDs.